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CISCRP AND BLUEBIRD BIO TO GIVE LIVE WEBINAR ABOUT CLINICAL RESEARCH PARTICIPATION AND RARE DISEASE
BOSTON, MA– The Center for Information and Study on Clinical Research Participation (CISCRP) an independent non-profit organization, will partner with bluebird bio, a Boston-based clinical-stage company committed to developing potentially transformative gene therapies for severe genetic and rare diseases and T cell-based immunotherapies, to host a live webinar about clinical research participation and rare disease. The webinar, “What You Need to Know: Clinical Research Trials and Rare Disease,” will be broadcast live on June 17, 2015 from 12-1 p.m. EST.
Jill McNair, Director of Education, Outreach and Community Support at CISCRP, will provide an introduction to clinical research – what it is, what we learn from studies and why it’s important for many different people to get involved. She will discuss the clinical research team, informed consent and the volunteer safeguards in place to protect all clinical research volunteers, as well as what trial volunteers can expect before, during and after trials. Webinar participants will have the opportunity to ask questions and gain a foundation of clinical research understanding.
“CISCRP is honored to partner with bluebird bio in the quest to find new therapies for rare diseases,” says McNair. “We are working to engage patients on a level that makes them realize their role as partners in the clinical research process and education is the key.”
Dr. Sandeep Soni, Director of Hematology at bluebird bio, will discuss the most recent publically available data from the ongoing bluebird bio gene therapy clinical studies. bluebird bio is currently studying three rare diseases: severe sickle cell disease, beta-thalassemia major, and childhood cerebral adrenoleukodystrophy.
To view this free webinar, please visit:
https://meetings.webex.com/collabs/url/35_Lcr8ixfsZ7lXrjrG37zYVlchWtk47y1B4EBePcFu00000
Media Contact: Maya Wise, Communications Manager, 617-725-2750, mayawise@ciscrp.org